Person(s) to Love

Location

Advocate(s)

Need

Money Needed

I found a hospital in Kisumu through Dorothy (Wayne’s mom) where DMD tests are done but I have to book an appointment with the doctor. So I wanted to inquire with you if I can go ahead and book an appointment with him and also ask for the charges so that I can share with you.

I believe you remember Kevin the case I found a few weeks ago, I talked to the mother yesterday and she told me falls and becoming frequent so I thought taking him for check up will be appropriate.

Should I go ahead and talk to the doctor then give you feedback please?

Mother: Odam Ayoo
Father: John Ayoo

“Dorothy told us that they had to transfer Wayne to a different school which was disability friendly because his former school he wasn’t receiving the proper care he needed. So the new school is great but they’re overwhelmed by the fee, they can afford to pay because the father lost his job due the COVID-19 pandemic and the Dorothy is struggling to make ends meet.

Their request was if you could kindly help them pay Wayne’s Fee.”

The fee is 27,600 Ksh. ($260.54)

“*Testing and Diagnosis preparations for *Jeremiah*

I have talked to Harriet (the contact person in Kapchorwa) to establish the possibility of Mum Jeremiah whether he can move with public Transport together with Jeremiah.up to Kampala.

She says it’s possible, Total  Transport Fees will be 180,000 including a snack for both of them.” ($52.44)

Needs a wheelchair

Daniel Chepkwerui, ( in Green) 16 years

( Symptoms of DMD) cant walk, has no Wheel Chair at the moment, walks by crawling)

The Mother in Blue Centre is Martha Chekweko

Needs a wheelchair

“Goodevening members.

Today we were able to take Shaban back to the hospital for review
After getting his xray results from Kabarole Hospital and took it back to the doctor who had recommended a pelvic xray however, the xray results were normal and there were no defects detected, but the doctor didn’t rule out muscular dystrophy in this boy because the his muscles in the pelvic region seem to getting weaker and why he’s getting pain time and again, the boy was referred to the physiotherapist to do more analysis and recommend help to the boy the physiotherapist noticed reduced muscle power around the lower limb when shaban was asked to walk around as a demonstration.

The physiotherapist recommended more exercises on addition to the treatment the doctor had recommended and he was asked to go back on 20th next month for review incase things dont change.

He however didnt go home  with the medicine he was recommended to take because it wasnt at the hospital pharmacy and we could have only bought it in the outside pharmacies but we didnt have enough funds.

Thank you everyone for your prayers and support God bless you!”

The doctor assessed him and he noticed signs and symptoms associated with Duchenne muscular dystrophy of the signs he noticed were, muscle wasting intact sensation, reduced muscle power which has made it difficult for him to walk and stand.
However the doctor suggested that we could do other tests of other illnesses like multiple sclerosis which can be investigated through a CT scan or MRI. He further recommended to continue physiotherapy.

“Sulait is aged 13 and currently in primary 4, The older brother too has started showing sign’s of muscular dystrophy. We promised their father that we shall facilitate medical test for the elder brother.”

“Hey Tim, I have already finalized what the two families (Lucy and the kid I told you about, Alpha Mundui) would need. Here’s the breakdown;

1.Charles Murage (Lucy’s son) – has convulsions and is on phenobarbitol
Food donations: Ksh. 4500
Warm coats and blanket: Ksh. 6000
Total: Ksh. 10500

2. Alpha Mundui-(Helen Mworia’s Son) – inpatient at Naromoru Disabled Children’s Home
Hospital bill-Ksh. 58000
Food donation-Ksh. 8500
Total: Ksh. 66,500

Total fundraiser: Ksh. 77,000 ($726.89)

I’ll go ahead and post it on Facebook page now allow it. Thanks”

Needs a wheelchair

Setting up her Dairy Business so that she can be self-sufficient. 2 boys with DMD (Wilson Kangethe and Anthony Njuguna). 100000 Ksh ($944.01)

Sons names and ages – Wilson Kangethe (age 21) and Anthony Njuguna (age 15)

DMD – Parents in Rwanda…

1. Niwomungeri Ange
‎+250 782 033 345.

2. Papa Kayishema Prince
+250 788 443 431

3. +250 788 585 477 Juliene. She speaks neither English nor French,just Kinyarwanda.

4. +250788515540 (no names given)

5.  +250783704097 (no names given)

“Hello sir.These are dmd parents from Rwanda.But kindly confirm with them personally because I dont know them at all,they were sent to me by a friend I had asked to link me with dmd parents in Rwanda.”

“Bertha and her family really do need help. When I first met her she was using a wheelchair, but with physiotherapy she is now able to walk. Her balance is not that much which means she’ll still needs a wheelchair.

Of course it will Good for her parents to do a business to help them take care of their children especially Bertha. I will try to find to find out what type of business they would want to venture in and how much will be required. That would be next week also cause I don’t work on weekends.”