The once healthy, bubbly boy began to lose his strength.

With that one, I have not bothered that much. I have no money and I’m also hypertensive. I resigned to my fate and told him to wait on the Lord. Then the others fell ill too.

About 5 years ago Paul Kayonga’s wife, apparently tired, packed her bags and left. He now cares for his 3 sons on his own.

According to doctors, Paul’s former wife carries the gene and any other male child she might have will most likely have the same condition.It’s a X-recessive gene, that’s how we describe it.

So these conditions are seen in boys. Because the boys have one X. The one abnormal X definitely shows that you are going to have that presenting condition.

But you have one abnormal X, and one normal X, it won’t be seen. Which is girls have 2 X’s and boys have 1 X and 1 Y.

Credits: Josephine Karungi, NTV News Uganda

By Tim Gillen

I'm a born-again christian, sold out to serving the needs of the less fortunate and in Sub-Saharan Africa. I founded The Everett and Austin Project in October 2018 to honor my 2 boys posthumously by helping people living in poverty going thru Duchenne Muscular Dystrophy and other rare diseases. My sons each died of Duchenne, Austin in 2012 at age 16 and Everett in 2017 at age 22.

2 thoughts on “One Minute Clip That Says A Lot, NTV News Uganda”
  1. Paul, you are not alone. Tim is working night and day on fundraisers and I am working diligently to help Tim. We desperately want to help you and your sons. Keep The Faith- God never gives you more than you can handle. I have a son with multiple disabilities and it is difficult on a daily basis because there is nothing we can do to stop their suffering, all we can do is pray and rely on the help of angels.

    1. Yes Paul! We are on our way. We are gaining new supporters everyday! Today I spoke with Miss Santia Deck’s assistant and I have learned that Santia is VERY interested in becoming a spokesperson for The Everett and Austin Project. I’m SO excited. What an amazing young woman. She expects to represent the US in the Olympics summer of 2020!! Very well spoken young lady. Check this out! YouTube – Is this the Female Barry Sanders?

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