Kayongas Update Paul Kayonga’s back and 3 severe ulcers are killing him. 😭😭 The biggest need of The Everett and Austin Project continues to be the ongoing needs of the Kayongas. Paul Kayonga is the father of the 3 Kayonga boys struggling with Duchenne Muscular Dystrophy. His boys are Julius (17), Herbert (14) & Emma (10). As you may… Read More »
Kobe Bryant is a legend and did a lot of good for humanity. I hadn’t seen his PSA on Duchenne Muscular Dystrophy until a few hours after he passed away. I was deeply shook and sharply grieved by his passing, and I still am. I found one source of comfort in seeing this heartfelt Publice Service Announcement. I… Read More »
Thank you so so very much for helping us pass the word. We received the $138 to keep the Kayonga boys in school by one donor about 3 hours ago. She is also a mother of 2 Duchenne boys in Iceland. Here is the text of her Facebook message to me about her donation… Hi, Your chairty really… Read More »
Hello everybody. I am in the United States and I started a charity named after my sons in October 2018. We just got our 501c3 registered charity status one week ago today & I received the approval letter from the IRS today. My son Austin died of Duchenne Muscular Dystrophy in 2012 at the age of 16. My… Read More »
Here is a brief 50 second video of the fun we had last Thursday night for the first ever Taco Eating Contest for TEAAP at Taco Bell in Yorktown Heights NY. It was our first “Eat for Duchenne” that we have had as a fundraiser for TEAAP. It was a blast spreading the word. Many thanks to my… Read More »
Here is a quick slide show of our maiden voyage of The Everett and Austin Project… Teina, Celia and I went to Uganda on October 21, 2019 and returned on November 4, 2019. It was an amazing trip. Such a beautiful country. Uganda is truly “The Pearl of Africa” imho. We were able to help the Kayonga boys… Read More »
Support The Everett and Austin Project January 16, 2020 between 10 am and 9 pm at Pizza Hut or TCBY in Mohegan Lake, or Taco Bell in Yorktown Heights by K-mart. As long as you present this flyer with your purchase, they will donate 20% of the bill to The Everett and Austin Project! You can present the… Read More »
Here is what we wrote to USAID this week. Most of the letter was written by Dr. Teina Daley. Tim put in some edits, formatting, pictures and such. Hi Matt, The overarching goal of the Everett and Austin Project is to provide sustainable means to fight poverty, and support children with Duchenne Muscular Dystrophy and other rare… Read More »
We are doing our third Hike for Duchenne on October 30th at 8:00 AM, Uganda time. That is 1:00 AM, New York time. So far we have 3 committed participants: Paul Collins, Josh Kasaija and myself. We will be hiking Mount Karangura Trail in Western Uganda. The screenshot of the description from the All Trails app is below. This… Read More »
This is Paul Kayong a couple of weeks ago in a remote village in Uganda telling us why setting up a shop will help him be self-sufficient to care for his 3 boys with Duchenne Muscular Dystrophy. We expect to be able to do this for him while we are in Uganda next month. Should only cost $500-$700… Read More »