Biira Edna – Cerebral Palsy, Profound Sadness

By | August 31, 2020

One of our teammates Kemigisha Barbra (Kemi) met this young girl Friday about 6pm, August 28, 2020, in Kasese Town in western Uganda. The precious little girl’s name is Biira Edna and she has cerebral palsy. She is 13 years old.

The family is one that has been abandoned by the father. The mother is the sole provider and she is currently working hard to collect firewood from the national park to support her family.

The family has five members who are currently living in a single room – the mother, two children, a sister and her niece. The rent is 30000 UGX per month, roughly $8.50 cents (PER MONTH)!

Kemi’s heart was and is broken. My heart was and is broken. Kemi shared these pictures and video with me shortly afterward. She was afraid to share them with us because we want to protect poor Edna’s privacy. We want to protect her so badly. 😥 But we also want to get her story out there. 

“I’ve never seen a child with cerebral palsy cry with such sadness,” said Kemi.

This family needs our help! Their living conditions are very poor and Biira Edna is quite sad. There are many more cases of this type of neglect in Uganda and many other places in developing countries!

I compiled the videos that Kemi took Friday into one story…

“This is her starting to cry….. are you seeing how sad she is?” said Kemi.

Kemi and I both lost it. Gut wrenching tears and sadness.

Here is the wheelchair that they have for Edna, but it is tucked away in storage because there is no room for it and because the veranda is too high for it to be used.

This wheelchair has flat tires and is in desperate need of attention.  Edna is a bit heavy for her siblings to carry her around.

So would you like to help us make life a little bit better for Edna and her family? We are making plans for her. Please join us in prayer and donate to the cause if you can.

We are planning to set the family up in a bigger home with room and access for a wheelchair, including building a ramp if we need to. Then we shall get her some simple mats so that they can lay her  on outside the house so that other children can play with her.

Then we shall try repairing the current wheelchair and if that works great, otherwise we will get her a new one. Then a small mattress for her to sleep on and beddings. I think you can see from the video that her small sleeping cushion is close to non-existent. Beddings for the whole family would be ideal

We are scouting out the land and are creating and immediate plan of action. It would be awesome if you could help us at The Everett and Austin Project to continue to help Edna and people such as Edna in Africa.

We are also hoping to help set up Edna’s mother and family with a self-sustaining business. Thank you for your help. It is MUCH appreciated!

 

Leave a Reply

Your email address will not be published. Required fields are marked *